Wednesday, June 5, 2013

latest carepage

Here is the latest CarePage update...


The adventure continues… 

On Monday I saw Dr. Sigalove, the plastic surgeon, my older sister went with me, and agrees he’s nice to look at J ha ha BUT he said the wound is doing what he had hope it would be doing slowly healing and making new tissue. Yay! So, surgery to close the wound was schedule for two weeks on Tuesday June 18. It is suppose to be outpatient and is being done at CDH. He is pretty much doing a skin graft on me. They will put me under. The wound will be “surgically cleaned” and then A patch of skin will be taken from my thigh, and then be put over my wound to “patch it up”. I will be in a immobilizer for 4-7days because its right over my knee so it cant bend. After the immobilizer it will take about a month for the rest of it to recover and heal. SO, for the next two weeks I need to continue to bandage my knee and do wound care –UGH. SO annoyed and sick of this.  I am having to switch the type of wound care that I am doing for the next two weeks, which is a pain. I was using this stuff called Prisma, which was like a form of collagen that helps produce tissue growth, healing and keeps the wound moist. The prisma dissolves and you don’t have to take anything off when you change the bandage. Well, I have to go back to “wet to dry” bandages. Which means I take wet gauze and pack it in the wound and then put dry gauze on top. This is a little more painful, because every time you change the bandage you have to peel off the gauze off the wound, which then “peels” a thin thin layer of tissue off – it hurts. Dr Sigalove wants this bandage type because it helps keep the wound more “raw” and keep infection away better. UGH. I am for some reason really worried and freaked out about this surgery… Dr Sigalove, my primary care, rheumatologist and endocrinologist have all gotten “worry phone calls” from me and all have reassured me, this is the right thing to do, it should go fine, and we are taking all the necessary precautions.  I will go to the wound care clinic on Friday the 7th and 14th to keep on eye things until surgery.

This coming Monday June 10, is the “oral surgery” to get rid of my wisdom tooth. As a precaution I am starting an antibiotic this weekend, and will have to take a stress dose of my medicine for my Addisons. Otherwise, im being told this is should go smoothly and without complications

On Thursday June 13 my next Actemra infusion is scheduled as well as seeing Dr Rhew, my rheumatologist.

I will continue to wear the air cast on my right ankle for the next two weeks as well. My right knee, Norma, and the ITBand issues are really bothering me and cuase a lot of discomfort, despite doing everything I am told to do, so I will head back to orthopedics to address that next week as well.


Thanks for all the encouraging notes, emails and texts… I love them. Im that person who keeps things like that and appreciate it, so thanks.  To answer the “how am I” question its sorta trick and a very loaded question… I am doing alright.  Things are hard and discouraging at time . They also are beyond overwhelming and wearing on me. Meltdowns are more frequent, as well as tears,  but im trying to keep my head above water as much as I can. Ive told some that this whole knee/wound thing is really throwing me for a loop and the diabetes diagnosis makes me a little crazy – not to mention the other diseases im trying to manage. But I am trying my best and trying even harder to be more open with people and reach out for more help, not as easy as one would think… I do NOT understand why God has thrown all this my way, but for some reason he has, so I will keep the hope and faith and continue to truck along on these not so fun adventures.

Love to all
Mandy

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