Really!?!?!

I went to the pain specialists yesterday to talk with Dr Maginali because he is the one who would be performing the kyphoplasty. I went in thinking we were going to book my procedure and it would be a quick appointment so I decided not to have anyone else come with me... WELL... That was NOT the case! I left in tears and was shocked and I kept thinking - really!?! Again!? Turns out it appears that I can not get the kyphoplasty done based on the newest CT scan. I know, really!? After waiting since April and wanting this done for so many months and being told this would help my back pain and be helpful! Really!? Again things never go as planned for me and things just suck. Apparently, one of the compression fractures is a prime candidate for the procedure the other is not. The second fracture is very bad in how it broke and one of the worst he's seen. Tears dripped down my cheeks as he told me this news and went on explaining the rest. If they were to do the kyphoplasty he is worried and scared that I could end up paralyzed from the procedure- REALLY!? Paralyzed? The way the bone crumbled and broke is towards the spinal cord and there are bone fragments that are very close to it. What could happen is when the push the cement in the fracture it could push those bone fragments around moving them into the spinal cord and could/would hit it, making me paralyzed. As I sat there hearing this news I just had tears. Really? Again I am struck with being a complicated case. He also told me he's not sure what they can do and there is a possibility that I may just have to live with the pain I have. I then started to really cry, because I can't live like I have been,,, the 24/7 pain, having troubles sleeping, having problems walking, sitting and standing, not being able to bend over or lift things. I can't I told him, isn't there anything you can do?  He said he was going to take my MRIs and CT scan to his partner and then two spinal surgeons to see what they say about my case and get others in puts. So, now that a day has gone by and I've had some time to process this I am praying that these surgeons can see something different and come up with some procedure/surgery for me to have done, for something with my back needs to change. I should find out next week what they have to say. 

The last year since we blogged

So what's been happening over the past year.... The main thing is I got diagnosised with s rare infection in March that we are still dealing with - Mycobacterium chelonae. And all I can say it has been a nightmare. Multiple IV medications, horrible sores which turned into wounds, hospital stays and a new doctor. I'm working on adding another page about the infection. But because of this infection I have had to stop my RA meds - which is awful. The other main thing is I have a broken back - two compression fractures at T11 and T12. I have had two different back braces and also now have been using a walker, I Just now this week got the OK to have my kyohoplasty surgery done which should really help me out. I have been in and out of the hospital all spring and summer due to the infection and RA flare ups, I got blood clots again in my lungs and now will be on blood thinners for life because it's my third time getting them. I've been Rx with anemia and needed blood transfusions because my hemoglobin fell so low. Fall has been good to me and things are going ok.. So... That's it in a nutshell.