Lots of people have been asking what the new treatment "plan" is for me. So here it is in a nutshell.
Starting back in July (?) I started getting a dose and half of Actemra, which is the infusion I get for my RA. However, a few days after I would get my infusion I would get sick with my Addisons Disease acting up and would be in ER or the Immediate Care Clinic getting treated for that - not cool. So, After messing with meds for my Addisons and trying different things I now get TWO infusions - one for RA and one for Addisons and they are back to to back. We have even worked out the timing of the infusions so its at the beginning of the week, so if something were to happen hopefully we would catch it before the weekend so I could stay out of the ER and see my regular doctors. NOW every three weeks on Monday I get an Actemra Infusion for my RA and then on Tuesday I get an infusion of Soludmedrol for my Addisons. We have done this treatment now two times and it has worked wonderfully! and are hoping that it continues to work that way. What also is making these treatment nicer is I now have a port for which I have all my infusions go through and I have all my blood draws taken from! It is making my life so much easier and much for pain free! Here is hoping things continue to go smoothly, my next ones are scheduled for October 13 & 14.
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