As of thursday I am now a full SIX weeks into our new treatment- Actemra, and its NICE to say we are finally seeing improvements. I was told SIX weeks was the turning mark for most people to start to see some improvements and THEY WERE RIGHT!!! So hears to the number SIX!!
Here are top SIX things we notice now that we are SIX weeks along...
1. I can wiggle my toes EVERY morning
2. My morning stiffness is decreasing
3. No more fevers
4. I am only on one pain killer - not three
5. I can drive again
6. my heart is doing great!!
now here are the SIX not so fun things we are dealing with
1. a HORRIBLE focculitis rash
2. a fungal throat infection
3. mouth sores
4. really shaky hands
5. not sleeping all that well
6. looking at new deformities :(
now SIX things that are happening soon...
1. Start occupational therapy for hands
2. start physical therapy for my hips
3. start physical therapy for my knees
4. getting braces for my feet
5. seeing a oral surgeon about wisdom teeth issues
6. seeing ENT for ear infections and ear problems.
Hope everyone is doing well. I am happy for today I am wearing NORAML jeans. Just like the little tank engine I am trucking along. ...
Wow, this is good news! I hope you keep seeing improvement. =)
ReplyDeleteThanks Joan!
DeleteSix things I love about Mandy: 1. She likes 80's movies. 2. She makes PT/OT sound fun. 3. She tells it like it is. 4. She laughs at my jokes. 5. She's crafty. 6. She's Mandy.
ReplyDeleteI love and miss you! Thanks for phone calls this week
DeleteSo glad you are looking for anything and everything that shows improvement. That is a great list. Hang on! It looks like better days are on their way. Yay to wearing normal jeans again! It is really the little things that bring so much joy, isn't it?
ReplyDeleteI hope better days are coming! Great article btw on health central!
DeleteYea Mandy!! So glad to hear about your progress .... you always say "baby steps" ... but these are much bigger than that!!
ReplyDeletejoan
:) still have a ways to go. But looking good
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