I know it has been awhile since the page has been update and
lots of you have been so wonderfully been asking how I have been doing, asking what’s
been going on, how can you pray for me ect… and well its really hard and
complicated to keep a care page updated when you have chronic illness because
there is ALWAYS something, and I mean ALWAYS something whether its thrush, ear
infection or having stress fractures in your feet. It also gets tiring writing
about things because it’s a constant reminder to me of how sick I really am,
and well that’s no fun. But here I am updating the page because well there are
things to update you all on and I appreciate all the wonderful support that you
give me – and well things are rough now and we could use an extra dose of lovin
& prayers these days J
OK… in attempt to catch you up to speed since JULY yikes! In
bullet form here we go on the major things, especially things we have been
following on the page.
-
Fall has been rough… first time not going back
to school whether as a student or a teacher. I spent two weeks in CDH for an RA Flare. My fixed income
changed because of disability status and my insurance changed. EEK.
-
Left knee with the GIANT wound -After four and
half months, it is finally all closed. YAY. What a crazy adventure that was. We
are now just working on try to work on scar healing, getting it to go from
purple to pink - so I can have surgery on the knee. I DO need a total knee on
this knee but CAN NOT have surgery until the scar on the knee is PINK because
of how fine and fragile the skin is on the knee, until then we can only do pain
management – boo.
-
Right Knee- Norma. We found out that when I fell
I cracked the knee cap-hence why I have been in so much pain. It has since
healed there is nothing to do- I just live with how it is. I injured my ITband
pretty bad so we are working on that in PT now again. We cannot and will not do
surgery on Norma because of how complicated my body is.
-
Been having some real bad GI problems on and off
since July, got cDiff in summer so now infections are harder to treat in me and
will soon be having some GI testing done over next week
-
RA flare really messed with both feet and have
been in PT for both of them
-
Have had multiple bad ear infections in and
recently learned that my TMJ is now being effected by RA (if you knew me in
high school you know this is NOT cool)
-
Diabetes has been a roller coaster since RA
flare but slowly being back on track. Got really sick to do one medication and
had to go off it and trying to figure out new treatment plan
-
Addisions is still up and down but lately it is
“stable” we are jus trying to figure out how taper down off the prednisone, and
it of course does not go well
-
Sojgrens has been acting up like it usually does
in the fall-dry dyr skin, cotton mouth, bloody noses ect.
Other big news… With everything going on we thought it would
be good to get some fresh eyes to look at things. My insurance does not cover
out of state so I cannot go to Mayo, Hopkins or Cleveland Clinic. SOOO I
currently am in the process of getting things rolling to be seen at the
University of Chicago- not sure what all this will entail we are still working
out ALL SORTS OF DETAILS, we just know that’s where I am going. They have my
information and my primary cares info and we are working with a friendly man
named, Lloyd. I am so thankful for my brother and his wife and so THANKFUL for them -its getting us places thereJ
They will get my file, I will see specialists, probably have some test done ect
and we will see what they have to offer in terms of my treatment. This does
cause me quite some stress & anxiety but I know the end result is hopefully a good thing.
Currently… we are working on figuring out GI things & GI
testing… going to PT for both feet and my ITband for right knee, Norma… looking
into TMJ issues AGAIN… figuring out new insurance… working on finding out governmental
assistance and new finance situation… and getting things ready for U of C…
just trying to make through each day! LOTS OF CHANGES THIS
FALL, and they haven’t been the most fun, so please keep the prayers coming my
way, I appreciate them. I will keep you posted as things start to progess with
U of C!
Thanks so much for everything!
Lots of love
Lots of love
Mandy
"Whatever I have, wherever
I am, I can make it through ANYTHING in the One who makes me who I am"
Philippians 4:13
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