30 Things About Me
1. The illness I live with is: Still’s Disease/ Rheumatoid Arthritis, Sojgrens and Addison’s
2. I was diagnosed with it in the year: 2009 3. But I had symptoms since: Probably since a child and for sure high school 4. The biggest adjustment I’ve had to make is: Not being able to do things I use to do before I got sick. Loosing my independence and having to ask for help things that use to be simple for me to do: cooking, doing dishes, doing my laundry.
5. Most people assume: That I am ok with my illness. 6. The hardest part about mornings are: Putting my feet on the ground and taking the first few steps and taking off my night splints. 7. My favorite medical TV show is: House, Greys Antanomy, Untold Stories of the ER 8. A gadget I couldn’t live without is: My iPhone! 9. The hardest part about nights are: Taking all my nighttime medicine and getting ready for bed... changing clothes, washing face.. 10. Each day I take __ pills & vitamins. (No comments, please) 18 11. Regarding alternative treatments I: I am open to try just about anything. I have done acupuncture and that helps ease my pain in my joints. 12. If I had to choose between an invisible illness or visible I would choose: NEITHER.
13. Regarding working and career: I love teaching and my job, however my body does not like it. Makes things very difficult and hard.
14. People would be surprised to know: That I cry a lot and get really mad & frustrated very easily. 15. The hardest thing to accept about my new reality has been: All the loss that I have encountered and how my joints and body has changed. 16. Something I never thought I could do with my illness that I did was: Give myself shots and have my knee replaced. 17. The commercials about my illness: Make me wish that I only had ONE disease. 18. Something I really miss doing since I was diagnosed is: Working out, going shopping, going out for wine. 19. It was really hard to have to give up: My normal clothes, going on vacation. 20. A new hobby I have taken up since my diagnosis is: Reading again and being more crafty. 21. If I could have one day of feeling normal again I would: I don’t know! 22. My illness has taught me: I am stronger than I thought and a pretty good fighter. 23. Want to know a secret? One thing people say that gets under my skin is: “are you better yet?” 24. But I love it when people: Come over to my house! Or when im having a hard time just sit with me and let me cry 25. My favorite motto, scripture, quote that gets me through tough times is: Phillipians 4:13 “ Whatever I have, wherever I am, I can make it through anything in the One who makes me who I am” 26. When someone is diagnosed I’d like to tell them: Be patient with others. 27. Something that has surprised me about living with an illness is: There is never a dull moment and you can never really predict things 28. The nicest thing someone did for me when I wasn’t feeling well was: make me dinner, clean my house and help take care of my dogs 29. I’m involved with Invisible Illness Week because: The website is very encouraging and want to help educate others about my disease and what I am living with.
30. The fact that you read this list makes me feel: happy.
2. I was diagnosed with it in the year: 2009 3. But I had symptoms since: Probably since a child and for sure high school 4. The biggest adjustment I’ve had to make is: Not being able to do things I use to do before I got sick. Loosing my independence and having to ask for help things that use to be simple for me to do: cooking, doing dishes, doing my laundry.
5. Most people assume: That I am ok with my illness. 6. The hardest part about mornings are: Putting my feet on the ground and taking the first few steps and taking off my night splints. 7. My favorite medical TV show is: House, Greys Antanomy, Untold Stories of the ER 8. A gadget I couldn’t live without is: My iPhone! 9. The hardest part about nights are: Taking all my nighttime medicine and getting ready for bed... changing clothes, washing face.. 10. Each day I take __ pills & vitamins. (No comments, please) 18 11. Regarding alternative treatments I: I am open to try just about anything. I have done acupuncture and that helps ease my pain in my joints. 12. If I had to choose between an invisible illness or visible I would choose: NEITHER.
13. Regarding working and career: I love teaching and my job, however my body does not like it. Makes things very difficult and hard.
14. People would be surprised to know: That I cry a lot and get really mad & frustrated very easily. 15. The hardest thing to accept about my new reality has been: All the loss that I have encountered and how my joints and body has changed. 16. Something I never thought I could do with my illness that I did was: Give myself shots and have my knee replaced. 17. The commercials about my illness: Make me wish that I only had ONE disease. 18. Something I really miss doing since I was diagnosed is: Working out, going shopping, going out for wine. 19. It was really hard to have to give up: My normal clothes, going on vacation. 20. A new hobby I have taken up since my diagnosis is: Reading again and being more crafty. 21. If I could have one day of feeling normal again I would: I don’t know! 22. My illness has taught me: I am stronger than I thought and a pretty good fighter. 23. Want to know a secret? One thing people say that gets under my skin is: “are you better yet?” 24. But I love it when people: Come over to my house! Or when im having a hard time just sit with me and let me cry 25. My favorite motto, scripture, quote that gets me through tough times is: Phillipians 4:13 “ Whatever I have, wherever I am, I can make it through anything in the One who makes me who I am” 26. When someone is diagnosed I’d like to tell them: Be patient with others. 27. Something that has surprised me about living with an illness is: There is never a dull moment and you can never really predict things 28. The nicest thing someone did for me when I wasn’t feeling well was: make me dinner, clean my house and help take care of my dogs 29. I’m involved with Invisible Illness Week because: The website is very encouraging and want to help educate others about my disease and what I am living with.
30. The fact that you read this list makes me feel: happy.
Yay! I read it! I love this too. Helps me understand better. love you mandy!
ReplyDeleteWow. Love you, Mandy.
ReplyDelete